He’s been in plenty of battles on AFL fields across the Coast, but now Terrigal-Avoca icon Peter Van Dam is facing a challenge of a different kind.
His son was recently diagnosed with a rare genetic condition, and now the region’s sporting community is rallying behind one of its legends.
Fundraiser will be held on 2nd July at Davistown RSL.
For tickets or donations please contact Ben Newport:0438 104 546
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I am glad so many people are on board to help this boy. However can’t help but feel angry and disappointed.
I am a 23 year old mother, living in housing commission, giving everything i have to my kids. I live week to week with money. My son Kody who is 6, has a rare genetic brain disease Bilateral Perisylvian Polymicrogyria. He can not walk, talk, feed himself, dress himself. He suffers from 150 seizures a day on average and of a night 80% of the time he has seizure activity in his brain so the seizures do not stop. There is no cure, there is no answers because it is so rare!
I am on carers pension and i spend my days looking after him whilst struggling to pay my essential bills let alone the extra medical bills. To top it off the special equipment he needs like a special bed, activity chair, toileting chair, wheel chair, afos and thats not even the start of it. There are no funding options for me to get a disabled ready van for my son because they only give that if you have a car thats built in the last 5 years and on a pension i can not get a loan.
So because im not a star athlete just a struggling mum im left to stress daily about what im going to do without any support. This may sound selfish but i feel this support is needed alot more by people in my situation