A young Central Coast musician says he could die if the federal government doesn’t subsidise treatment for his rare blood disease.
Aaron Lee is one of less than one hundred Australians who suffer from PNH and says all of their lives are at risk if they can’t access the life-saving but expensive treatment.
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I think the government should fund it.
It’s a horrible thing to have, and if the treatment is available we should get it to help the other people who aren’t so lucky to get the treatment like Aaron.
Don’t let people die from this.
Treat PNH
I’m really proud of Aaron speaking out about this. I firmly believe that the government should fund the treatment that is urgently needed to help those like Aaron with this life threatening disease. In a country that’s considered to be among the richest in the world, we should be able to fund this treatment to save lives.
I’m also with Jasmine and Heather, I’m glad Aaron has told people about this. It is now up to the government to help people in need. They will help people with broken arms, legs etc, why not people with life threating conditions.
TREAT PNH.
If there is an effective treatment available, the government should do everything in it’s power to save Australian lives, no matter how rare the condition is. It is a small price to pay to improve the quality of life for sufferers of this horrible disease. The government is simply trying to save money by allowing these people to die.
my mum has cancer… the subsidized drugs she receives are life saving, and cost the Aus gov a hell of alot more than 300K a year… FOR JUST HER…. TEN YEARS AGO health system expenditure on cancer related treatment was $2.7 BILLION The people suffering from PNS in this country are asking for LESS that 3 million per year to subsidizes the cost of this medication. We live in Australia and have a right to affordable treatment regardless of condition.
TREAT PNH!!
I’m shocked & slightly disgusted that the treatment isn’t already government funded. The treatment is really expensive, and yeah its an expense to the government but there’s less than 100 people in the country who have it, so its not as if they’re losing a lot! I mean, these people’s lives are at risk & I doubt they can afford the treatment. If the government can provide free ultrasounds etc for pregnant women why can’t they provide some kind of financial support or funding for people with PNH?
the government NEEDS to fund this. you cannot put a price on a persons life.
Northie is a great friend of mine, and he and other Australian citizens living with PNH need assistance from the government
If there is a medical solution to this problem, it is disgusting that the government is not doing everything in it’s power to provide it to the people who need it.
I know some people will say it’s more complicated than that, etc, etc, but it really isn’t;
a life is a life,
medical treatment shouldn’t be exclusive to those who can afford it
therefore it’s time for the government to pay for this treatment.
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That was very attention grabbing.
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