COMMUNITY HELP OUT IN BACKYARD BLITZ

Raising children is the toughest job around, but imagine if two of your sons suffer from a rare genetic condition – so rare they’re the only two in Australia.

To make things even tougher, the Port Stephens family has failed in its bid for an early inclusion in the National Disability Insurance Scheme, leaving them without much needed government help.

So the community has taken it upon themselves to lend a hand.